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MARK EGLY

Webinars & Educational Programs

Learn, Connect, and Empower Yourself Through Expert-Led Education

By Mark Egly Foundation

Introduction

Knowledge is power—especially when living with or caring for someone with Alpha-1 Antitrypsin Deficiency.

The Mark Egly Foundation is committed to providing accessible, high-quality education through regular webinars, podcasts, and interactive programs that bring expert knowledge directly to you—wherever you are.

Our Educational Vision:

  • ✅ Expert-Led Content: Physicians, researchers, and specialists sharing cutting-edge knowledge
  • ✅ Patient-Centered Focus: Topics that matter most to your daily life
  • ✅ Interactive Learning: Live Q&A, discussion, and community connection
  • ✅ Accessible Format: Free, online, recorded for on-demand viewing
  • ✅ Comprehensive Topics: Medical, lifestyle, emotional, financial, and advocacy subjects
  • ✅ Regular Schedule: Monthly webinars and growing podcast library

Whether you're newly diagnosed, a long-time Alpha, a family member, or a healthcare provider—our educational programs are designed to inform, inspire, and empower you.

Upcoming Live Webinars

TBA

Email Education Series

"AATD Education in Your Inbox"

Sign Up for:

  • Newly Diagnosed Series: 12 weekly emails guiding you through first 3 months
  • Living Well Series: Monthly tips for optimizing health
  • Research Updates: Quarterly summaries of latest AATD research
  • Advocacy Action Alerts: When advocacy opportunities arise

Subscribe: markeglyfoundation.com/webinars

Interactive Learning Modules

Coming 2026: Self-Paced Online Courses

Planned Modules:

  • "AATD 101: Complete Beginner Course" (8 lessons)
  • "Advanced AATD Management" (6 lessons)
  • "Caregiver Training Program" (10 lessons)
  • "Advocacy Skills Workshop" (5 lessons)

Features:

  • Video lessons
  • Quizzes and knowledge checks
  • Downloadable materials
  • Discussion forums
  • Certificates of completion
  • FREE for all participants

Professional Education Programs

CME/CE Accredited Webinars:

  • "AATD: Diagnosis, Evaluation, and Management" (2.0 CME)
  • "Recognizing AATD in Clinical Practice" (1.0 CME)
  • "Augmentation Therapy: Evidence and Practice" (1.5 CME)
  • "Comprehensive Care for AATD Patients" (2.0 CME)

Provider Resources:

  • Clinical guidelines summaries
  • Diagnostic algorithms
  • Patient handouts for your practice
  • Referral networks

Register: markeglyfoundation.com/webinars

Patient-to-Patient Learning Circles

Peer-Led Discussion Groups

Monthly Topics:

  • Newly Diagnosed Welcome Circle
  • Augmentation Therapy Support Group
  • Exercise and Activity Group
  • Mental Health and Wellness Circle
  • Caregiver Support Group
  • Young Adults with AATD
  • Parents of Children with AATD

Format: Small group video calls (10-15 participants max)

Facilitated by: Trained peer mentors

Schedule: Various times to accommodate schedules

Join: markeglyfoundation.com/webinars

Local Chapter Educational Events

In-Person Learning in Your Community

Chapters nationwide hosting:

  • Monthly educational meetings
  • Guest speaker presentations
  • Pulmonary rehab open houses
  • Social events with educational component

Find Your Local Chapter: markeglyfoundation.com/alpha1-friend-network

Tips for Effective Learning

Before Attending a Webinar:

  • ✅ Review topic description
  • ✅ Write down your questions in advance
  • ✅ Gather any relevant medical records (if applicable)
  • ✅ Invite family members to join
  • ✅ Prepare note-taking materials
  • ✅ Test technology (audio, video) ahead of time

During the Webinar:

  • ✅ Minimize distractions
  • ✅ Take notes
  • ✅ Submit questions in chat
  • ✅ Engage with polls or activities
  • ✅ Consider recording if allowed (for personal review)

After the Webinar:

  • ✅ Review notes within 24 hours
  • ✅ Discuss key points with family or healthcare team
  • ✅ Implement one or two actionable tips
  • ✅ Share resources with others who might benefit
  • ✅ Follow up with presenters if questions remain
  • ✅ Complete any evaluation surveys (helps us improve!)

How to Register

Free Registration Required:

  • Visit markeglyfoundation.com/webinars
  • Select webinar you want to attend
  • Click "Register"
  • Fill out simple form (name, email)
  • Receive confirmation email with link
  • Add to your calendar

Day of Webinar:

  • You'll receive reminder email with access link
  • Click link 5-10 minutes before start time
  • Test audio and video
  • Introduce yourself in chat if comfortable!

Technical Requirements

To Participate You'll Need:

  • Computer, tablet, or smartphone
  • Internet connection
  • Speakers or headphones (to hear)
  • Microphone optional (can submit questions via chat)
  • Camera optional (not required, but nice for community connection)

Platform: Most webinars use Zoom (free, easy to use)

Accessibility:

  • Closed captioning available for all webinars
  • ASL interpretation available upon request (email accessibility@markeglyfoundation.com at least 1 week in advance)
  • Recordings available for viewing anytime

Can't Attend Live?

No Problem!

  • All webinars are recorded
  • Receive email with recording link within 48 hours
  • Watch at your convenience
  • Submit questions after viewing—we'll respond via email

Suggest a Topic or Speaker

We Want to Hear From You!

What topics do you want to learn about?

Who should we invite as speakers?

What questions keep you up at night?

Submit Your Ideas:

Your input shapes our educational programs!

Become a Webinar Presenter

Share Your Knowledge and Experience

We're Looking For:

  • Healthcare providers specializing in AATD
  • Researchers working on AATD treatments
  • Patients willing to share their journey
  • Caregivers with wisdom to impart
  • Mental health professionals
  • Financial/insurance experts
  • Exercise and nutrition specialists

If You're Interested:

  • Email: speakers@markeglyfoundation.com
  • Include: brief bio, proposed topic, why you're passionate about it
  • No formal presentation experience required—we provide support!

Educational Partnerships

We Collaborate With:

  • Alpha-1 Foundation
  • AlphaNet
  • COPD Foundation
  • American Lung Association
  • Academic medical centers
  • Pharmaceutical companies (educational grants, no influence on content)
  • Patient advocacy organizations

Interested in Partnering? Contact: partnerships@markeglyfoundation.com

Never Miss an Opportunity to Learn

🔔 Get Notifications:

Email Newsletter:

  • Webinar announcements
  • Podcast episode releases
  • New resources available
  • Upcoming events
  • Subscribe: markeglyfoundation.com/contact

Text Alerts:

  • Webinar reminders (optional)
  • Text "ALPHA" to 555-123 to sign up

Social Media:

  • Facebook: @MarkEglyFoundation (event announcements, live streams)
  • Instagram: @MarkEglyFoundation (educational posts, stories with tips)
  • Twitter: @MarkEglyFdn (research updates, webinar highlights)
  • YouTube: Mark Egly Foundation (full webinar archive, short videos)
  • LinkedIn: Mark Egly Foundation (professional education, research)

Website:

  • markeglyfoundation.com/events (comprehensive event calendar)
  • Add to your phone or computer calendar

📱 Mobile App (Coming 2026):

  • Push notifications for live webinars
  • Streaming access
  • Downloadable content for offline viewing
  • Community discussion forums
  • Personalized learning tracks

Feedback and Continuous Improvement

We're Always Learning and Growing

Tell Us How We're Doing:

What We Want to Know:

  • Topics most helpful
  • Presentation quality
  • Technical issues
  • Accessibility needs
  • Scheduling preferences
  • Suggested improvements

Your Voice Shapes Our Programs

Knowledge Changes Outcomes

Research Shows:

  • Educated patients have better disease outcomes
  • Understanding treatment improves adherence
  • Knowledge reduces anxiety and fear
  • Self-management skills improve quality of life
  • Informed patients advocate more effectively

Our Commitment:

We believe every person affected by AATD deserves access to high-quality, accurate, accessible education. No one should navigate this journey uninformed or alone.

Mark's Vision:

"When I was diagnosed, information was scattered and hard to find. I had to piece together my understanding from multiple sources, often conflicting. I want everyone who comes after me to have a clear, comprehensive, trusted source of education—so they can make informed decisions, take control of their health, and live their best lives with AATD. Education is empowerment."

Get Started Today

Ready to Learn?

👉 Register for Upcoming Webinar:

Visit markeglyfoundation.com/webinars and sign up for the next session

👉 Browse Webinar Archive:

Hundreds of hours of free education available now at markeglyfoundation.com/webinars

👉 Subscribe to Podcast (Spring 2026):

Email podcast@markeglyfoundation.com to be notified at launch

👉 Join Monthly Connection Call:

Next call: First Wednesday of the month at 12:00 PM ET

Call-in number: 1-800-ALPHA-CALL

👉 Download Free Resources:

markeglyfoundation.com/books-resources

👉 Follow on Social Media:

Stay connected for daily education and community

Contact Our Education Team

Questions? Suggestions? Need Help?

📧 Email: education@markeglyfoundation.com

📞 Phone: 1-800-MARK-EGLY (ask for Education Department)

💬 Live Chat: markeglyfoundation.com/ (M-F, 9 AM - 5 PM ET)

📍 Mail: Mark Egly Foundation - Education Department

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Education is the foundation of empowerment. Knowledge is the key to better outcomes. Community learning transforms individual struggle into collective strength.

Join us in our mission to ensure every person touched by AATD has access to the education they need to thrive.

Welcome to your learning journey. We're honored to walk alongside you.

Last Updated: December 2025

Webinar schedule subject to change. Visit website for most current information.

CME/CE credits pending accreditation approval.