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MARK EGLY

In Tribute

Honoring Lives, Creating Legacy

By Mark Egly Foundation

This is a sacred space to celebrate, honor, and remember the lives of friends and loved ones touched by Alpha-1 Antitrypsin Deficiency and the many related conditions identified in Mark Egly's groundbreaking research. Every tribute gift transforms personal loss into hope for others, ensuring that those we love continue to make a difference in the world.

Your tribute accelerates research, advances education, and brings us closer to a world where no one suffers from undiagnosed Alpha-1.

Make a Tribute Gift

Honor Their MemoryMake a meaningful donation to the Mark Egly Foundation in honor or memory of someone special. Your gift supports:

  • Critical Research toward cures and improved treatments
  • Medical Education about Alpha-1 and related conditions
  • Patient Awareness to identify undiagnosed individuals
  • Family Support for those navigating an Alpha-1 diagnosis
  • Universal Screening initiatives to prevent future suffering

How Tribute Gifts Work:

  • Donate any amount in honor or memory of your loved one
  • Receive a personalized acknowledgment of your gift
  • Optional notification sent to family members (with their contact information)
  • Your tribute supports all aspects of the Foundation's mission

[Make a Tribute Gift →]

Create a Tribute Page

Build a Living MemorialCreate a personalized tribute page celebrating your loved one's life while raising funds and awareness for Alpha-1 research and education.

Your Tribute Page Can Include:

  • Personal stories and cherished memories
  • Photos celebrating their life
  • Information about their connection to Alpha-1
  • A fundraising goal and progress tracker
  • Updates for supporters and donors
  • Share functionality for social media and email

Why Create a Tribute Page?

  • ✓ Amplify Your Impact - Invite friends, family, and community to contribute
  • ✓ Share Their Story - Help others understand Alpha-1 through personal experience
  • ✓ Create Community - Connect with others who've lost loved ones to AATD
  • ✓ Honor Their Legacy - Turn grief into action that saves lives
  • ✓ Ongoing Memorial - A lasting tribute that continues to make a difference

[Create a Tribute Page →]

Host a Memorial Event

Gather in RemembranceHonor your loved one by hosting an event that brings together family and friends while raising funds and awareness for Alpha-1.

Event Ideas:

  • Memorial walks or runs
  • Celebration of life gatherings
  • Golf tournaments or sporting events
  • Anniversary remembrances
  • Birthday fundraisers
  • Community awareness events

We'll provide resources, materials, and support to help make your memorial event meaningful and successful.

[Plan a Memorial Event →]

Accelerating Research

Every tribute gift funds scientific investigation into:

  • Early detection methods
  • Novel treatment approaches
  • Understanding disease mechanisms
  • Connections between AATD and autoimmune conditions
  • Quality of life improvements for patients

Advancing Education

Your support helps educate:

  • Medical Professionals about recognizing Alpha-1 symptoms
  • Patients and Families about managing the condition
  • The Public about this rarely diagnosed disease
  • Policymakers about the need for universal screening

Preventing Future Loss

Tribute gifts support initiatives that will:

  • Identify undiagnosed patients before organ damage occurs
  • Advocate for newborn screening programs
  • Reduce the diagnostic odyssey from years to weeks
  • Ensure access to life-saving treatments

Honoring Mark Egly

The Mark Egly Foundation itself is a tribute—a living memorial to a man who transformed personal struggle into groundbreaking discovery. Mark's legacy lives on through every patient diagnosed early, every researcher pursuing new treatments, and every family that avoids years of medical mystery.

When you give in tribute, you join Mark's legacy of turning adversity into advocacy.

Share Your Tribute Story

We invite you to share how Alpha-1 has touched your life and why you've chosen to honor your loved one through the Mark Egly Foundation. Your story may inspire others and help raise awareness about this rarely diagnosed condition.

[Share Your Story →]

One-Time Memorial Gift

Make a single donation in any amount to honor your loved one's memory. Ideal for:

  • Memorial services and celebrations of life
  • Anniversaries and birthdays
  • In lieu of flowers requests
  • Personal remembrances

Monthly Tribute Giving

Create an ongoing legacy through monthly gifts that provide sustained support for Alpha-1 research and education. Your recurring tribute:

  • Provides reliable funding for long-term research projects
  • Honors your loved one every single month
  • Can be adjusted or paused at any time
  • Maximizes your impact over time

Major Memorial Gifts

For significant tribute gifts, we can work with you to:

  • Name research initiatives or programs
  • Create endowed funds
  • Establish annual awards or scholarships
  • Develop special projects aligned with your loved one's passions

[Discuss Major Gift Options →]

Honoring Your Wishes

When you make a tribute gift, you can choose to:

Notify Family MembersWe'll send a thoughtful acknowledgment card to family members informing them of your tribute (gift amount is never disclosed unless you request it).

Anonymous TributeYour gift will honor your loved one without revealing your identity to family members.

Public RecognitionInclude your tribute in our annual report, website memorial page, or special recognition programs (with your permission).

Private TributeKeep your gift completely confidential while still honoring your loved one's memory.

Your Tax-Deductible Gift

The Mark Egly Foundation is a 501(c)(3) nonprofit organization. All tribute gifts are tax-deductible to the fullest extent permitted by law. You'll receive a receipt for your records with our EIN.

We're Here to Help

Creating a tribute or making a memorial gift can be emotional. Our team is here to support you with:

  • Guidance on tribute options
  • Assistance creating tribute pages
  • Memorial event planning support
  • Sample language for obituaries and memorial programs
  • "In lieu of flowers" suggestions

Contact our Tribute Giving Team:[Contact information to be added]

From Loss to Hope

Losing someone to Alpha-1 Antitrypsin Deficiency or a related condition is devastating. But within that grief lies the power to create change—to ensure that others receive earlier diagnoses, better treatments, and more hope than those who came before.

Your tribute transforms sorrow into action, memory into mission, and love into lasting legacy.

Every Gift Matters

Whether you give $10 or $10,000, in a one-time memorial or through monthly tributes, your gift makes a difference. Combined with gifts from others who've lost loved ones to Alpha-1, we're building a movement powerful enough to change the standard of care worldwide.

"To live in the hearts of those we love is not to die."— Thomas Campbell

When you honor your loved one through the Mark Egly Foundation, their memory becomes a beacon of hope for countless others facing Alpha-1 Antitrypsin Deficiency.

Begin Your Tribute Today

Choose how you'd like to honor your loved one:

  • [Make a Tribute Gift]
  • [Create a Tribute Page]
  • [Plan a Memorial Event]
  • [Share Your Story]
  • [Contact Us for Support]

In loving memory of all those who've been affected by Alpha-1 Antitrypsin Deficiency. Your legacy lives on through the lives you'll help save.